Lost in the time warp!

Well its 10-30, I've skipped a few days of updating. Mostly because it has been up and down with lots of wait and see!
We started Celia on pedialyte again @ 5ml/hr which after a day or so made the diarrhea, gagging,sweating and flushing come back. We stopped it of course but I really need know why this is happening because we have to get her back on her gtube feeds!!
Tpn has added some weight back but she is still about 10lbs off from good weight.
She continues to be very tired. I get her up to go for a cruise or two a day and just that wears her out!
Most of her labs are pretty good. Had a little hiccup with her PICC line not drawing for labs but we got it fixed!  Inflammation markers continue to be high, lipase level continues to drop, potassium is good, still waiting on several labs from today.
The GI team has dx's her preliminarily with inflammatory bowel disease-non specific. Inflammatory bowel disease is actually the head disease of 2 other diseases so the reason they say non specific is because her case doesn't fit what they typically see under either, but we do still have some tests pending so hopefully they will tell us more.
Started treatment this afternoon. Prednisone and sulfa to begin with. This will be a life long autoimmune disease. We should start to see a difference in 2-3 days, if not.........well we change things up and add things in apparently.
Upper GI @9am 10-31. Checking for motility and strictures.
Nana and I are stir crazy as hell, tired of hospital food, going broke and about to go looney.
Thank you everyone for your thoughts and prayers!
PS- please ignore any grammar issues or spelling errors, I'm just plain tired and typing this on my phone.