Update 10/25 Well the pedialyte last night resulted in the diarrhea returning at 6am after almost a full day of none. GI dc'd the pedialyte and ordered TPN. So far all tests have come back negative, no virus, no bad bacteria, no reason for this
to be happening. The attention has now been turned to this being something along the lines of IBD, chrones, or celiac's. Apparently any of those diseases can cause panceatitis and all her other recent problems. Tests are in the works for those diseases. Also waiting to get a colonoscopy and endoscope. Starting on TPN tonight, this could be problematic. She is on her second
I.V., we haven't been able to draw off of it for labs for 2 days now, it is only working for infusion, we have to use this peripheral for the TPN and pray it doesn't blow the vein. Every day the blood draws have taken at least 4 sticks. She is terribly bruised!! Still haven't gotten the results of today's labs because it took forever to get them drawn it was pretty late when they got sent in, so I don't know what her lipase level is today. My mom drove out here from Kansas yesterday and made it just in time for it to snow.
Nana has been the biggest help ever! Letting me leave the room to go get food, shower and nap, knowing that someone is right there taking care of my baby like no one but Nana can! She's been with us every step for almost 15 years and hasn't let the distance stop that! We are blessed! I also have been blessed with a great support system here thanks to Mark, Amber, Kathy, and Gage and all of our friends and family!
I gave Celia a bed bath while the aide gave her hair a shampoo cap, she liked it!
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